Trae's Medical Update

Well we have made our first trip (of many) to Primary Children's Hospital to start our search in finding what is going on with our little Trae. We met with the genetics and it went well. He did keep asking us why we were there to see him cause he really didn't see anything wrong with Trae. I told him I am asking myself the same question. I just want answers. He was very good and Matt and I came away with some comfort in the answers he gave us. He think Trae has Hypotonia. click here for a full detailed description. It is mainly low muscle tone. But it still didn't answer our question as to why he is not growing. The only thing they did was a X-ray of his hand to check his growth plates, but are waiting to hear the results on that one. We are also so concerned about his breathing while he sleeps so we finally got a little in sight on that. They think maybe with his Hypotonia his muscles in his throat could be collapsing while he sleeps and that could be causing it. So we have a appointment Aug 7 at the Sleep Clinic at Children's. Hopefully it will give us some answers and find what is going on.
All in all it was a step in the right direction I think we will be going forward from here on out. But through all this and more to come Trae is such a trooper and a great sport with all these doctors. I love the doctors we saw at Children's as did Trae they just put the kids at ease and it it the best medical place for kids.
Thanks to everyone for all your prayers, love and support. We are very blessed with our family and friends.